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Journal Entry

Hepatitis C Outreach Project, since 1992

April 30, 2009

You can find my blog at www.hcop.org/blog. We have a forum for anyone interested in the issues related to hepatitis C and we fact check marketing claims and the realities of claims made about hepatitis C. We are, therefore, raising a number of issues the medical community believes it has answers to, but usually does not have complete pictures of. We are the first organization to be formally recognized as a hepatitis C education organization in the world. We have spoken by invitation to the National Institutes of Health, AmericanPublic Health Association, Congress on Women's Health, Micropigmentation, numerous health advisory boards and state strategic planning groups, University of WI whyfiles.com (tattooes), Appalchian Health (AHEC) CME and CEU programs, and numerous others, including the Surgeon General of the United States.

There are three distinct areas covering hepatitis C. We have advisors for all three and we work toward looking at the virus itself and using logic to raise questions about claims made by clinical practitioners who, in our view steo outside of their areas of expertise on a regular basis.

We are primarily concerned with accuracy within context. Simply put, do the claims made make reasonable, logical sense in the context of what patients experience, pharmaceutical marketing claims, and what the basic science tells us about the characteristics of the virus itself?

The areas we synergize are: public health, virology, clinical trial results and contextual frameworks (countries where studies are done and the relationship to the virus as it presents itself in different areas of the world (cultural context and cultural literacy.

This is important because claims made are often based on a "perfect patient" and the results may not apply to other community issues (ie African Americans, Hispanics, Europe vs North America, etc.)

So we challenge, question and follow in great detail the statements made and the assumptions that are expounded and fact check against the science and common sense.

Donations are critical as we do not accept grants from manufacturers of the treatments, Independence from marketing efforts is critical to unbiased fact checking.

thanbey

www.hcop.org/blog

www.hcop.org/forum

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